tag:blogger.com,1999:blog-43946334944118040242024-03-21T19:31:47.200-07:00Stronger than Multiple SclerosisMeganhttp://www.blogger.com/profile/16256736102360470619noreply@blogger.comBlogger17125tag:blogger.com,1999:blog-4394633494411804024.post-19741311121056074482011-11-15T13:16:00.000-08:002011-11-15T13:18:26.821-08:00WhyLately I'm struggling with the why's in life and I think I know what's to blame. For the better part of 2 months now my daughter has been incessantly singing the same song...no, one line from the same song! Over and over and over again I've been hearing "Why do I do the things I do?.." She's strung together an odd series of notes and sings these words in strange octaves from morning till night. So yeah, it got me thinking, why do I do the things I do? Why do I spend so much time working out, what's the point?<br /><br />Yes I've dipped my toe into the depression pool lately, both out of frustration and self pity. In my defense it's not my fault. MS and depression go hand in hand. It's kind of like the whole chicken and egg debate, am I depressed because I have MS (scared of my symptoms progressing and shots 3x a week) or is MS making me depressed (like the chemicals in my body being all funky). Really though, why do I go to the gym?<br /><br />Ok fine (eye roll)... I do know the answer to that ‘why.’ I know I’m a healthier person after I hear my cycle teacher say that with every pedal revolution and sweat bead I am stronger. I know that most of the classes are packed full of others who want to be healthier and stronger too, and I know if I get my behind to the gym it will be encouraging to spend an hour beside people who want the same things I do. It is absolutely impossible to feel alone in a fitness class and it is equally as impossible not to be energized by a teacher who could easily double as a motivational speaker! It’s not just the teacher that helps me to move though, the music, even the unlikely tunes help to get my muscles working.<br /><br />Similar to my daughter, I love music but can't carry a tune if it jumped in my arms. Music and exercise are awesome together, and in my little world MS has it's own playlist. I’m not crazy, I realize MS is not a person but at times it is helpful to personify this cheating, lying, deceitful disease and tunes are my love songs to it. Not only jams from this generation apply though 80s rock does the trick too. Recently I heard rocker, Bret Michaels make a profound statement in reference to his Diabetes. He said, "When you have a disease you either do something or don't," deep... But ya know what, his words inspired me to write this particular blog today and reminded me that I already know the answer to why. Working out has millions of benefits (next blog I’ll list them all???) Anyway, well said Mr. Michaels!Meganhttp://www.blogger.com/profile/16256736102360470619noreply@blogger.com0tag:blogger.com,1999:blog-4394633494411804024.post-4937446648437082112011-05-13T18:51:00.000-07:002011-05-13T18:57:38.753-07:00I've been busy lately (and not just with <a href="http://www.facebook.com/pages/Sweet-Cakes/140309792691044">caking</a>) For the last month or so I've been fighting a tough mental battle wherein the MS part of my ever shrinking brain makes me feel defeated and weak.<br />The MS doubt I battle reminds me that I am unable to do things due to lack of energy or pain and it fools me into feeling like I'm disapointing people and being lazy. When I start listening to Captain MS I forget reality and instead of praising myself for listening to my limits and avoiding a potential exaserbation, I wollow. Even though I know I continue to get stronger by using my muscles and keeping my brain engaged in physical movement, I've been focusing on the things this disease keeps me from doing.<br /><br />Yes, the logical part of me knows I am strong, the logical part actually listens to my amazing instructors at <a href="http://clubs.lifetimefitness.com/">LIFETIME FITNESS</a> who cheer on, and motivate each pedel stroke or bicep curl. When they speak to the class I'm a part of, as a team of athletes, I am overcome with a sense of joy and sweaty accomplishment. I am amazed that I can hold my own with those around me and claim that title! Sometimes, when I let myself truly watch the inspiring cycle videos of people who laugh at obsticals, I can see myself in them. When I notice the gigantic number of calories my heart rate monitor reports me losing, I am all filled up with darn near amazement! It proves to me that this broken little body can still move if I ask it to. That is if I carefully choose my exercises and prepare ways to combat my weaknesses, like with ice in a water bottle to maintain maximum coolness and wearing properly ventilated clothing. Then I'm ok and can take part in more things. But admitting that a hot day will increase the weakness in my legs and add to my unbalance thus making me say no to things like a field trip outside in May or an imromptu walk to school. That's the reality Captain MS wants to focus on....thus my battle.<br /><br />These low feelings all started when I chose not to do the annual MS Walk, the big spring fundraiser from our local chapter. I usually walk and my generous friends and family usually donate lots of money towards finding a cure. Usually, I get excited for the walking challenge by setting distance goals for myself and all the money given by those who love me moves me to tears and inspires me. Since the walk always falls around the time of my MSaversary it's a very emotional time of reflection. This year I just didn't want any part of that. I pouted and wussed out not wanting to put forth the effort and visit all the emotions on an early (possibly cold) Saturday morning. I chose to just donate and thank those who did walk for the cause. The logical part of me knows that's ok. That sometimes, some things are too much for whatever reason and that others will step up if I'm not able. Except I know showing apathy towards change opened the door for MS doubt to sneak in and take over. I began focusing on the increasing obsticals spring and summer pose. I then looked at all I can't do instead of focusing on the strength this fundraiser shows me. Because I let the door open wide enough for doubtful seeds to be planted I got wrapped up in all that instead of what other walkers were able to do. Like a dear friend, who raised many dollars using her self proclaimed big mouth to tell her story. But recently I hopened my eyes to her efforts and was reminded of my desire to share with others the strength God has blessed me with.<br /><br />I am able to use these words on this platform, I hope to inspire others thru my experiences and tips. As trite as it may sound when I stop and think about all I have dispite MS I realize my blessings thru MS. By sharing my story and struggles I hope to encourage everyone to move in some way. I'm here to remind myself and others that it's better, way of living. Even when it's hard, yes you can, yes I can! *no political affiliation intended*Meganhttp://www.blogger.com/profile/16256736102360470619noreply@blogger.com2tag:blogger.com,1999:blog-4394633494411804024.post-3586961402680138082010-11-20T21:22:00.000-08:002010-11-20T21:39:13.549-08:00Everyone is doing it...Thankfully I didn't die from my tooth removal surgery! It did knock me on my butt more than just a little and it sucked (duh). No relapse to report, but I believe the lack of exercise and the increase in apathy towards movement resulted in increased leg pain and worsening of secondary symptoms for a while. I haven't blogged lately due to well, life. I feel like changes in my schedule and over all life plans being shuffled around have kind of sucked the wind out of my sails. That was until a few weeks ago that is. That's when things started popping up to reignite my push to move. <br /><br />First, I saw a commercial on tv for <a href="http://www.myrafitkit.com">myrafitkit.com</a>. The add laid out exactly the things I write about here! It said specifically that working out leads to increased mobility and less pain for Rhuemetoid arthritis patients in particular. This fit kit is an individual workout that factors in the strengths, weaknesses and goals of each individual person. I honestly didn't spend too much time on the website but the commercial laid it out pretty clearly. It was awesome to hear on national tv how exercise is beneficial to another disease! <br /><br />That was cool and inspiring enough but then the next day I received the winter edition of my MS news magazine, <a href="http://www.NationalMSsociety.org/magazine">Momentum</a>, from the National MS Society. Inside I found a Mobility Alert article discussing strength training, and the questions surrounding it. Inside the article I found a study from the University of Florida that explained low intensity workouts with standard gym equipment improved muscle strength and reduced overall fatigue and disability in just eight weeks.The article went on to explain different types of exercises and offered some guidelines to follow such as how important it is respect your fatigue and discuss everything with your Doctor.<br /><br />Nice timing right!? Ok but then shortly thereafter my mother jumped on the fitness bandwagon! My 54 year old mother suffers from osteoporosis and has a lot of physical limitations, but she truly has the desire to take advantage of all the health benefits I keep telling her about. She's interested to find out how exercise strengthens bones and provides more energy. For her birthday this year I bought her a stability ball and put together a simple routine with exercises targeting all the major muscle groups. She did well in our little 'personal training' session and the next day was so excited about her new goals that she even came with me to a cycle class! Cycle classes at Lifetime Fitness are among my top 10 favorite things... in the world. Here, I am able to pedal at the pace my body needs that day while listening (and reading on the screen) the instructor telling the class buckets of inspiring things such as; "nothing works unless you do," and "no one cares about the number of times you fall- they care about the number of times you get up". I can get a hold of many, many more phrases, and yes when the sweat is dripping into my eyeballs and I just want to quit those things keep me going. I was so proud of my mom that day and I was left feeling truly validated for all the time I spend raving about exercise!Meganhttp://www.blogger.com/profile/16256736102360470619noreply@blogger.com0tag:blogger.com,1999:blog-4394633494411804024.post-25935251317810546832010-09-06T19:51:00.000-07:002010-09-06T19:54:18.011-07:00The proof is in the (sugar free) puddingThe way I see it, it's September and school's back in session so that's why I'm about to be given a test. One of those big ones... I feel like I'm taking the SAT for MS on Tuesday. I'm about to put my body through stress and pain by having oral surgery. I'm going to take away nutrition and proper movement for a while, pump myself body full of new narcotics and see how well this little body performs.Yup I'm f-hu-r-e-e-e-k-e-d out! I've spent the last 5 years being so careful not to anger my body too much. No, I have not stopped living but I've said no to many things including both big life changes (like a job on my feet and having more children) to tiny daily things (like going to an outdoor festival in July.). I've kept a pretty tight reign on my stress level and my heat tollerence and I truly believe my constistancy and routines are as much of a factor in staying healthy as my Rebif injections are! <br /><br />It's been a nice long summer wherein I squeezed a couple vacations, (which simply took extra planning and a roof rack for my Gazelle) visited multiple water parks (where I was always careful to stay in cool water when I was hot) and had many trips to the gym. My inexpensive Lifetime Fitness membership more than paid for itself each month! Especially after I decided to turn my "just good enough" workouts into "I bet I can lift more and go longer" ones. I am stronger now than I ever before and I enjoy fooling people into believing I am just like any other gym junkie. I'm not. I work out for a purpose that's bigger than becoming smaller. <br /><br />So the positive bone in my body says I've made myself strong enough to keep an exaserbation at bay no matter the trauma I'm about to put it through...it just sucks that the 'bright side of things' bone is in my pinky toe. Positive I am not, strong as hell I am (yeah that pinky toe is crazy strong!) I'm scared to death at what MS is capable of. After all it was the trauma of labor and child birth that spun me into the relapse that gave me weakness on my right side and a slight tremor. For years prior to that I was blissfully unaware that the oddities I'd felt for years were byproduct of MS. To calm my fears, a few of my loved ones have come up with creative analogies such as, dental surgery is simply like being in a car wreck while driving a Hummer but giving birth is like being blind sided by a semi. Ooooo can't wait! No really, that does make sense to me, so I should be fine right?!Meganhttp://www.blogger.com/profile/16256736102360470619noreply@blogger.com0tag:blogger.com,1999:blog-4394633494411804024.post-14275918499731511472010-03-26T08:07:00.000-07:002010-03-26T18:53:52.883-07:00Move...FasterMy husband is awesome. He often spoils me with wonderful gifts and truly makes spending time together a priority. Recently, he out did himself! This winter when snow was falling by the foot and the stress of Christmas was upon us, he booked us on a warm, relaxing seven day cruise! Since this is our fourth cruise together we kind of consider ourselves cruise veterans and pretty much know what to expect. I expect a lot of relaxing, sleeping, drinking, eating...and fighting crowds.<br /><br />I hate crowds. Yeah, yeah everyone hates crowds but for me (and I'm sure many other MSers) crowds actually cause me pain. I can't stand taking little tiny steps and walking at a slow pace while trying not to step on anyone. Basically I have walking 'road rage!' When I take those short little steps my balance is challenged and the muscles in my legs have to remain tight while I'm walking on my tip toes. I physically can not follow slow walkers and as rude as it may look I need to quickly zoom past. Yeah, if I was in my car I guess I'd be all up on the person's bumper in front of me, but not shaking my fists or honking the horn or anything! I mean I'm not walking so fast as to break a sweat or elevate my heart rate, but when I walk at my own pace I am able to extend my legs and step with my whole foot. The down side is since I'm walking at such a quick pace it does take a lot of energy so I do have to stop for breaks every once in a while, but who would think the lady with MS would be leading the pack? <br /><br />See, that's just the thing, people with MS are usually in pain. Since something in their body is hurting or numb the thought of walking, or doing anything quickly is daunting. True, it's safer to stay with the pack or even behind it but in my experience moving quickly (at my own pace) is always the best option.<br /><br />So as annoying as it will be to get stuck walking behind the other 2,240 (or so) passengers I'm sure 'Vacation Megan' won't mind too much, I'll just keep up my dodging and weaving... with a margarita in hand of course.Meganhttp://www.blogger.com/profile/16256736102360470619noreply@blogger.com0tag:blogger.com,1999:blog-4394633494411804024.post-45868737120077008892010-03-22T18:52:00.000-07:002010-03-22T19:01:57.927-07:00Spring<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiA_PKjOWTNsGfjVMRatQlu0kweABFCj0K_MBwmZLhPigt5CowpnEhneo6kxjwR8gRqDXsYCbf33DdixEDorXESo9Bt4hw47taDv20IYlIxqRoeAr-WFhIAXL8sxV6hUkKBFk4m7rtC4mrU/s1600-h/yak+tracks.jpg"><img style="float:right; margin:0 0 10px 10px;cursor:pointer; cursor:hand;width: 80px; height: 80px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiA_PKjOWTNsGfjVMRatQlu0kweABFCj0K_MBwmZLhPigt5CowpnEhneo6kxjwR8gRqDXsYCbf33DdixEDorXESo9Bt4hw47taDv20IYlIxqRoeAr-WFhIAXL8sxV6hUkKBFk4m7rtC4mrU/s200/yak+tracks.jpg" border="0" alt=""id="BLOGGER_PHOTO_ID_5451642061348121730" /></a><br />Well, four days ago I was watching my girls dig in the sand at the park and three days ago I felt like I was trapped in a snow globe so… it must be spring in Nebraska! The calendar says so at least, so when I saw my tulips coming up I thought I could (probably) pack away my YakTrax. These little grippers saved my hiney this year time and time again. <br /><br />It was an icier winter than most, which petrified me. I, like most MS patients, fall A LOT. I stumble often and am very aware that my kryptonite is found under my feet. Having to walk across things like uneven ground or thicker than average carpet are found on my list of scary situations, but ice and snow definitely top that list. So after spending most of December repeatedly slipping, falling… and complaining, my dear mother in law took pity on me and bought me these funny looking little shoe thingys for Christmas. Of all the gifts she’s given me (which are a lot, she’s very generous,) these are the best. Thanks to her I spent January free of falls (on the ice at least) and was finally able to walk to the mailbox without fear.<br /><br /> YakTrax are essentially tire chains for your shoes. The down side to these little gems is that they aren’t very cute (but neither is falling.) The up side is they are crazy practical, light weight and easy to use. They slip on and off any shoe and provide extra stability and confidence on ice and snow. These can be purchased at any sporting goods store for about $20.00 or <a href="http://cozywinters.com/shop/yk-walk.html?source=base">here</a>. No, I’m not a salesperson for these little grippers, I just know I will never spend another icy winter without ‘em. I mean I am a Nebraskan so I’m not planning on packing them too far back in my closet.Meganhttp://www.blogger.com/profile/16256736102360470619noreply@blogger.com0tag:blogger.com,1999:blog-4394633494411804024.post-1154094394095529152009-10-31T20:50:00.000-07:002009-10-31T20:56:14.277-07:00VacationSo I felt that it was rather appropriate to share this blog about my vacation on Halloween (seeing that it was only slightly less horrific than a Wes Craven thriller!)<br /><br />In the last four years I’ve come to accept the fact that Captain MS and his pilot Rebif always steer the ship and I’m usually not even asked where I want to go.. but not this time! On this vacation I decided to be more in charge of my surroundings and activities to better suit my energy level and my fantastic symptoms. So my family decided to rent and RV and drive to the Black Hills. No long airplane rides and waiting in theme park lines for us!<br /><br />Because it is absolutely essential for me to fit my workouts in throughout the day, our thought was that I could bring my trusty Gazelle, take potty breaks as often needed, and stretch my legs as we made progress on our journey. Prior to the trip, we spent many hours researching and planning activities that would be MS friendly (such as making sure flat walking trails were available so unstable, rocky ground wouldn’t be an issue.) Seeing our hard work pay off would have been lovely but unfortunately, we never made it that far.<br /><br />No, instead of swimming at Evan’s Plunge or buying priceless souvenirs at Wall Drug, we found ourselves yanking burs off our puppy with needle nosed pliers, cleaning up a crushed can of ravioli, and scrubbing our daughter’s vomit off the carpet. Since stress results in excruciating leg pain for me, I was extremely thankful for all the room I had to move around (avoiding the smelly spills on the floor of course.) Due to the outrageously awful scent in the RV, our five day trip that we had been looking so forward to was turned into a day and a half long adventure. <br /><br />I’m grateful to know that options do exist for making travel a little more comfortable with MS. And even though very little went according to plan, it makes for a good story!Meganhttp://www.blogger.com/profile/16256736102360470619noreply@blogger.com1tag:blogger.com,1999:blog-4394633494411804024.post-37743801091851038692009-08-28T14:55:00.000-07:002009-08-29T14:15:55.738-07:00Exercise as a coping tool<style></style><div><span style=";font-family:Arial;font-size:85%;" ><span style=";font-family:Times New Roman;font-size:100%;" >So I don't think I need a shrink, I don't like to talk about my feelings. I'm a keep it to myself kind of person but I sure have found that stress + MS is down right crippling. So on those 'heavy' days I turn even more to exercise. I've learned that I need to let out my frustrations and if I don't MS rears it's sneaky little head in odd, annoying ways.<br /><br />Let me explain the week I've had. My husband changed jobs this summer which resulted in a change in insurance. So, I was prepared for a headache or two when it came time to refill my three prescriptions (Rebif, Provigil and Baclofen.) But dealing with the mail order process turned out to be nothing short of FOUR wasted days of hellish frustration. I was left in the hands of less than helpful call center employees pleading with them to get my delivery to me on time. Since few people truly understand MS I quickly gave up on throwing the disease label at them while I explained that missing doses is just not an option. I hate how dependent I am on my prescriptions but I'm thankful for the relief they provide me. Unfortunately, with the added stress of days full of hang ups and transfers, even my medicine wasn't enough for me to release the pain in my legs, the 'MS hugs', or the tremor on my right side.<br /><br />Being physical is a great way of letting out aggression, most people agree to that, but with this disease I've found it's absolutely critical to let out tension. I could actually feel my legs getting tight as I yelled at the phone last week so I tried to schedule in an extra stretch or found myself working a little harder on the Gazelle at those times. All week I found myself anticipating my daily afternoon workouts even more than normal. I was careful not to let my rage guide my exercise though, because that would just leave me in worse shape (and the mail order pharmacy folks would win.) Truly, I did find that day after day, t</span></span><span style=";font-family:Arial;font-size:85%;" ><span style=";font-family:Times New Roman;font-size:100%;" >he extra bit of effort made me feel better both mentally and physically almost instantly....and at the end of the week I received my medicine. </span></span></div> <div><span style=";font-family:Arial;font-size:85%;" ><span style=";font-family:Times New Roman;font-size:100%;" ></span></span> </div> <div><span style=";font-family:Arial;font-size:85%;" ><span style=";font-family:Times New Roman;font-size:100%;" >I'm napping all weekend.</span><br /></span></div><span style=";font-family:Arial;font-size:85%;" ></span>Meganhttp://www.blogger.com/profile/16256736102360470619noreply@blogger.com1tag:blogger.com,1999:blog-4394633494411804024.post-58286731321207367092009-06-20T21:11:00.000-07:002009-06-20T21:22:03.769-07:00Summertime<style></style><div><span style=";font-family:Arial;font-size:85%;" >It's 411 degrees outside. No, not really but couple the heat on a mid-June day here in Nebraska with the stifling humidity and that number sounds pretty accurate!</span></div> <div> </div> <div><span style=";font-family:Arial;font-size:85%;" ><br />Ok, I really shouldn't complain. Yesterday and today are the first HOT days we've had here, God has blessed the area where we live with many days of below average temps! Each day that I awoke to window opening weather I said a little prayer of thanks, knowing that the summer day ahead would not be as bad as it could have been. MS hates the weather, especially the heat (which is a head scratcher because the vitamin D supplied by the sun (which is hot!) has such a positive effect for those with MS.)</span></div> <div><span style=";font-family:Arial;font-size:85%;" ></span> </div> <div><span style=";font-family:Arial;font-size:85%;" ><br />So I've come to terms with this summer thing happening every year no matter where I live, so I'm forced to make the best of it. Summer is the time when most people gather outside for holidays and events and laugh in the face of sky high temps as they grab another brewsky, but that's just not do-able for me. This season makes me give up countless outdoor events with family and friends but like everything in the last 3 years of living with this, I've learned how to modify and deal so I don't have to be locked away laying in the prone position.</span></div> <div> </div> <div><span style=";font-family:Arial;font-size:85%;" ><br />I avoid crowds whenever possible no matter the temperature but when those crowds are under a blistering sun, I quickly stop caring what band is playing or what team is winning in the CWS and focus only on the pain in my legs and my diminishing vision. So crowds are a no. That's it, that's the ways it is, oh well. I just can't say no and oh well to my kiddo when she asks me if we can go to the pool. Making her pay for this disease is so hard for me. So I've learned how to make trips to the pool ok. Very simply - I watch the weather, some days (mid to upper 90's) aren't ok but many days are because I belong to a graduated pool. Because it's so shallow, I can spend the whole time with the majority of my body in the water and I go inside for breaks with the air conditioning. I joke to my husband that every so often I need to "regain my hearts" like I'm playing a video game. When my heart satchel is full, after 10 min or so of resting in the cool, I'm ready for combat again.</span></div> <div><span style=";font-family:Arial;font-size:85%;" ></span> </div> <div><span style=";font-family:Arial;font-size:85%;" ><br />There are also a few tools I've found. One is the mister my husband installed on our deck. I joke every time that I feel like produce when it's on and yes that's exactly what it is, a device that provides a small (we're able to regulate the flow of water) amount of mist when sitting under the spray nozzles. It's amazing how a small bit of water plus a breeze provides such great relief but doesn't provide a wet feeling like running through the sprinklers would. Another thing that makes sitting out on the deck possible are the roll up sun shades we installed (for $30 or so) that cut the heat quite a few degrees. The last tool I have for the summer is a neck wrap my mother in law got me a while ago. This clever tubular thing is filled with <span style=";font-family:Times New Roman;font-size:100%;" >special crystals that expand when activated by water. The crystals turn into a gel that stays cool for days. Use it over and over again by simply reactivating it in normal tap water.They are sold at a few health and beauty websites and at QVC for about $16.00.</span></span></div> <div><span style=";font-family:Arial;font-size:85%;" ></span> </div> <div><span style=";font-family:Arial;font-size:85%;" ><br />So bring it on summer...</span></div>Meganhttp://www.blogger.com/profile/16256736102360470619noreply@blogger.com0tag:blogger.com,1999:blog-4394633494411804024.post-58775760197411971122009-05-15T14:30:00.000-07:002009-05-15T14:41:09.026-07:00Since the MS walk...<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiadQHR7HXQqJDVgqlrSaeNLyfXSbgyOb_LWiM3x8_9ETsOdyTIUFDmR8jnmhvb3Yb4hHVXWZG4nz8vb4BAo993QshCG-JMLu4_sH2HXKydmDbRXPfwbV5l8IVMUj6aoikzAh-bSMmjNJWe/s1600-h/walk+and+spring+024.jpg"><img style="margin: 0pt 10px 10px 0pt; float: left; cursor: pointer; width: 200px; height: 150px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiadQHR7HXQqJDVgqlrSaeNLyfXSbgyOb_LWiM3x8_9ETsOdyTIUFDmR8jnmhvb3Yb4hHVXWZG4nz8vb4BAo993QshCG-JMLu4_sH2HXKydmDbRXPfwbV5l8IVMUj6aoikzAh-bSMmjNJWe/s200/walk+and+spring+024.jpg" alt="" id="BLOGGER_PHOTO_ID_5336168355385997986" border="0" /></a><br /><style></style><div><span style=";font-family:Arial;font-size:85%;" >I came, I saw, I conquered. That's only partly true, MANY people did those things in the name of defeating MS, and truly the walk kind of conquered me.</span></div> <div><span style=";font-family:Arial;font-size:85%;" ></span> </div> <div><span style=";font-family:Arial;font-size:85%;" >So despite my lack of blogging lately, I do have every intention of keeping up this page and sharing my workout secrets with those that are interested... but truly I haven't blogged since the walk because I've been feeling like a hypocrite and a failure. </span></div> <div><span style=";font-family:Arial;font-size:85%;" ></span><span style=";font-family:Arial;font-size:85%;" ></span> </div> <div><span style=";font-family:Arial;font-size:85%;" >The walk kicked my tail, and that was discouraging. I've had a few new symptoms since that day like cramps in my feet, facial twitches and an eye tick that has been CONSTANT for over a month now. I keep reminding myself that everyone gets sensations like these and we can't blame everything on MS (something a Dr once shared with me.) I'm not sure if I really over exerted myself or if these symptoms would appeared anyway.</span></div> <div><span style=";font-family:Arial;font-size:85%;" ></span> </div> <div><span style=";font-family:Arial;font-size:85%;" >When it comes down to it, I was supposed to be stronger than having a 2 mile (or so) walk make me feel this way. For all the hours I spend working out each day, and how toned and muscular I am, I was convinced that I would be walking laps around the others that don't know what I do about physical activity. I've been disappointed, both in myself and in this stupid disease. Since each day is different with MS, maybe on a slightly cooler or cloudier or less windy day I could have gone farther...</span></div> <div><span style=";font-family:Arial;font-size:85%;" ></span> </div> <div><span style=";font-family:Arial;font-size:85%;" >So after really over analyzing why I fell short of my goal, I identified one of the reasons I had such a hard time that day. </span></div> <div><span style=";font-family:Arial;font-size:85%;" >Most of my working out is done on machines that have a stable base and railings. Sure I can power through 30 min on my Gazelle or the elliptical where my hands are glued in place, but a walk brings with it uneven ground and a free moving upper body....I'm not sure why I didn't think of that. I guess I thought that since e</span><span style=";font-family:Arial;font-size:85%;" >very morning in my home gym, I do 10 or so balance exercises on my BOSU and while that has gotten my stronger and given me more balance, it hasn't transformed me. </span></div> <div><span style=";font-family:Arial;font-size:85%;" ></span> </div> <div><span style=";font-family:Arial;font-size:85%;" >In the last month or so I've been flopping back and forth between rolling over and letting MS win and setting new goals for myself like walking 10 minutes on the tredmill <strong>without </strong>holding on to the sides, or adding dumbells when I'm on the BOSU... most days I choose the latter. When it comes down to it, exercise is the best pain reliever I can find, and whether or not I fall short of my goals this disease isn't going anywhere</span></div>Meganhttp://www.blogger.com/profile/16256736102360470619noreply@blogger.com1tag:blogger.com,1999:blog-4394633494411804024.post-49442776580691947742009-04-15T18:04:00.000-07:002009-04-15T19:28:15.098-07:00National MS Society - Walk MSThis Sunday is another special landmark day in MS's life....the MS walk.<br /><br />The first MS Walk that I participated in fell (coincidentally enough) on my first MSaversary. It's amazing to me to think how far I've come since then with the help of exercise and stretching. That first year, my family was excited that I was even able to walk a half-mile or so. My husband and daughter wanted to stop to play as often as possible but I know they were just trying to give me a chance to rest. This year, no one is questioning my ability to walk the whole 6 miles if I so choose. What a difference 2 years and some exercise can make!<br /><br />The walk is something I and my loved ones look forward to each year. It's a fun rally event that the MS Society coordinates. The support from folks at the Nebraska Chapter of the National MS Society has been great. They've taken the time to answer a huge number of my questions and continually put forth great efforts to raise money for research. Their encouraging events like the wine walk in the fall, the bike ride, and this walk every spring really helps keep my (and I'm sure many other people's spirits up.)<br /><br />Having this walk every year continually impresses me and my loved ones when we witness the generosity of the people here in Omaha. By the time all is said and done, almost $200,000 will be raised at this one event. All this during a recession. It's so heartwarming to know people care.<br /><br />Thanks MS Society & thanks Omaha!Meganhttp://www.blogger.com/profile/16256736102360470619noreply@blogger.com0tag:blogger.com,1999:blog-4394633494411804024.post-30219071571216466022009-04-14T18:37:00.000-07:002009-04-14T18:47:43.425-07:00Happy MSaversary to me!I have to say when I was first diagnosed I promised myself that MS would never define me…but after having it for 3 years I have come to terms with the fact that MS has not only defined me, it has completely, 100% made me who I am. At the risk of sounding all poetic, allow to entertain this thought…<br /><br />Today in my spinning class with tears in my eyes and sweat dripping down my nose, I got lost in my thoughts. It was the perfect setting: the lights down low, the music pumping, and my instructor shouting things like “Go, go,” and “Push harder,” I began wondering what my life would be like if I was never diagnosed…. No, if I was never given this disease.<br /><br />I don’t think I’d be in that 1:00 spinning class because I would be at work teaching. If I never had MS I would have all the mental abilities a 29 year old woman should have and enough energy to keep up with elementary school students. Or, I would be at home with all my little babies or playing tag with my 4 year old. I wouldn’t have to give myself a shot tonight or think about my workouts tomorrow. But I do.<br /><br />I have spent 3 years dealing with the things I have and don’t have…just like everyone else does. Everyone has stuff, my stuff just has a name. Everyone has aches and pains and obstacles to deal with.<br /><br />At the end of the day I decided that I can spend time hoping I will always have the strength I do today but I know I won’t. Since MS is a degenerative disease I have decided I will live my life with the strength God grants me each day. Today I’m strong.Meganhttp://www.blogger.com/profile/16256736102360470619noreply@blogger.com1tag:blogger.com,1999:blog-4394633494411804024.post-2458479363791232402009-04-02T08:20:00.000-07:002009-04-15T17:51:16.824-07:00Core<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEixiMjD4u2mW27MC0qOlbrXThZwEjv_hBMLby7Bb7DkPPa5Hqh2w8oh0a4zGZvsY880oxfpWZFZygzyOsuHTtA8_XuX3oNBk03rg6jzqK3xxZKTrn8RjIHIBmQNzc5IU6A_g9NfYk3_N_LS/s1600-h/Bosu.JPG"><img style="margin: 0pt 10px 10px 0pt; float: left; cursor: pointer; width: 100px; height: 74px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEixiMjD4u2mW27MC0qOlbrXThZwEjv_hBMLby7Bb7DkPPa5Hqh2w8oh0a4zGZvsY880oxfpWZFZygzyOsuHTtA8_XuX3oNBk03rg6jzqK3xxZKTrn8RjIHIBmQNzc5IU6A_g9NfYk3_N_LS/s200/Bosu.JPG" alt="" id="BLOGGER_PHOTO_ID_5320117320141262626" border="0" /></a><br /> I had to laugh this morning when I thought about the gifts my husband gave me. Recently, I told my daughter that the best gifts are ones the recipient would use the most, gifts that would enhance the things that person loved. This year, my husband gave me a wall of mirrors for my gym area and a BOSU balance trainer. Yeah, working out is something I love.<br /><br />In May of 2007 I joined the newest gym in town, Lifetime Fitness. My daughter and I joined for the pool and I hoped I might at some point, be brave enough to take some classes. It took me a while to work up the courage, but nearly two years from the day I joined I am proud to say I workout at least three times a week there. I can’t believe the classes I take or and the equipment I use. The BOSU is one of the pieces of equipment I never thought I’d be able to workout on. This funny shaped thing has one flat side and the other is 1/3 of a ball. The name means BOth Sides Up (www.bosu.com) because you use both sides in your training, that’s the idea at least.<br /><br />At first I laughed at the thought of me standing on an unstable surface. At first I couldn’t, but after using this piece of equipment once a week or so for things like squats, jumps and sit ups (ya know, all things someone with MS has a hard time doing) I began to notice that I was drawing my strength from my core (which include the muscles from the ribs to the hips) and not my weak legs. We use the BOSU in my favorite Monday morning class, core. For me, this class is more than just getting a flat stomach, it’s about learning how to focus on my posture and use all my muscles for balance.<br /><br />I’m still far from having prima ballerina poise and balance, but the more time I spend on my BOSU the less scared I am of stairs.Meganhttp://www.blogger.com/profile/16256736102360470619noreply@blogger.com0tag:blogger.com,1999:blog-4394633494411804024.post-38247881316760207182009-03-23T14:15:00.000-07:002009-03-23T19:25:45.367-07:00WeatherI don't feel well today and I blame the weather. It can really wreak havoc on an MS patient. I try and keep an eye on the temperature as well as things like barometric pressure and how much humidity is in the air. It helps me explain away my symptoms and rationalize why I'm feeling a certain way.<br /><br />So due to the unbelievable pressure in my head and angry MS from the fierce winds blowing, I had a lame-o workout day... but I still made it to the gym for my Monday Core class! Wait, I skipped ahead too far. I realize I haven't even finished explaining my morning routines, I got stuck on my love for the Gazelle, allow me to go back.<br /><br />The purpose of my morning workout is to warm up my muscles so I can stretch them more easily but I also use this time to develop some muscle tone in my legs so they can keep getting stronger. After 10-15 minutes on my much loved Gazelle, I usually hop on my elliptical trainer for 15 minutes. I stick with a preset program that brings my heart rate up and burns calories. Here is where I break a sweat but my tower fan keeps me from overheating. In the basement, where my gym is located, it is nice and cool....<span class="blsp-spelling-error" id="SPELLING_ERROR_0">ok</span>, incredibly cool, <span class="blsp-spelling-error" id="SPELLING_ERROR_1">ok</span> many people say it's freezing down there but heat makes me wilt. When my body temperature is elevated for a long period of time my legs begin to ache more, my vision becomes blurry and I become even weaker than normal so when I workout a fan and water nearby are a must.<br /><br />Next, it's time to stretch. I can only workout for 1/2 hour or so before I need to stretch on the floor or go to my ballet bar for some side stretches and leg lifts. My "ballet bar" is nothing more than a $10 railing that my husband bought at Lowe's along with some brackets to screw into the wall. My bar is simply a nice addition to my small gym area. A couch, chair or table is usually good enough for me to stretch with. Anything will do as long as I can fully extend my leg muscles. I am often found throughout the day propping my leg up on anything that allows for a deep stretch in my hamstring when I lean forward. Here, balance is an issue for me so I keep one hand on the piece I'm leaning on.<br /><br />After the bar I continue my stretches on the floor...but I'll describe those at next time..Meganhttp://www.blogger.com/profile/16256736102360470619noreply@blogger.com0tag:blogger.com,1999:blog-4394633494411804024.post-65111725953392568742009-03-17T18:45:00.000-07:002009-03-17T18:49:21.653-07:00In my last few entries I've felt like I didn't clearly spell out the purpose of this blog.<br />Because of exercise I am stronger and healthier than I ever thought I could be. Using an exercise routine for pain management and fatigue reduction is something I had to more or less discover on my own with my neurologist's approval. When I first began a workout plan I was advised to take proper steps to not over exert myself and to be aware of issues such as compromised balance and heat intolerance. I want so badly for others to have the same increased quality of life that a workout plan has brought me.<br /><br />After a brief search I found many articles supporting my experience (linked below) but one thing I did not find in my research, was a practical plan that someone with a disability could put into practice. Practical advice and first hand experiences are what I hope to share with this blog.<br /><br /><a href="http://www.neurology.org/cgi/content/abstract/62/11/2058">http://www.neurology.org/cgi/content/abstract/62/11/2058</a> - <em>Here I found a trial showing that subjects with MS participating in either a 6-month yoga class or exercise class showed significant improvement in measures of fatigue compared to a waiting-list control group.<br /></em><br /><a href="http://msj.sagepub.com/cgi/content/abstract/8/2/161">http://msj.sagepub.com/cgi/content/abstract/8/2/161</a> - <em>Compared with baseline, the MS training group demonstrated a significant rightward placement of the aerobic threshold, an improvement of health perception, an increase of activity level and a tendency toward less fatigue.<br /></em><br /><a href="http://www.sportsmedicine.adisonline.com/pt/re/spo/abstract.00007256-200434150-00005.htm;jsessionid=JQrLFnTXV1CQN2yv4QSr4GvLQBJZzMvBCMJnMnnv8gThtNhrFQ96!-1046349743!181195628!8091!-1">http://www.sportsmedicine.adisonline.com/pt/re/spo/abstract.00007256-200434150-00005.htm;jsessionid=JQrLFnTXV1CQN2yv4QSr4GvLQBJZzMvBCMJnMnnv8gThtNhrFQ96!-1046349743!181195628!8091!-1</a> - <em>A growing number of studies indicate that exercise in patients with mild-to-moderate MS provides similar fitness and psychological benefits as it does in healthy controls.We reviewed numerous studies describing the responses of selected MS patients to acute and chronic exercise compared with healthy controls. All training studies reported positive outcomes that outweighed potential adverse effects of the exercise intervention<br /></em><br /><a href="http://www.ncbi.nlm.nih.gov/pubmed/6703889">http://www.ncbi.nlm.nih.gov/pubmed/6703889</a> - <em>A planned daily schedule of activity and rest seemed to be a partially effective response to symptomatic fatigue for the majority of subjects studied.<br /></em><br /><a href="http://www.neurology.org/cgi/content/abstract/63/11/2034">http://www.neurology.org/cgi/content/abstract/63/11/2034</a>- <em>Walking speed improved in this randomized study. The results confirm that exercise is safe for multiple sclerosis patients and should be recommended for those with mild to moderate disability.<br /></em><br /><a href="http://msj.sagepub.com/cgi/content/abstract/14/1/35">http://msj.sagepub.com/cgi/content/abstract/14/1/35</a>- <em>During recent years, it has been increasingly acknowledged that exercise benefits MS patients. Also, resistance training of moderate intensity seems to be well tolerated and to have beneficial effects on MS patients.<br /><br /></em><br />It sounds so <span class="blsp-spelling-corrected" id="SPELLING_ERROR_0">counter intuitive</span> to say that working out provides more energy and less fatigue but medical science and my own experiences point to the fact that it does <span class="blsp-spelling-corrected" id="SPELLING_ERROR_1">in fact</span> do just that!Meganhttp://www.blogger.com/profile/16256736102360470619noreply@blogger.com1tag:blogger.com,1999:blog-4394633494411804024.post-34990968226252272072009-03-15T14:30:00.000-07:002009-03-15T19:31:54.347-07:00<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj0UEFIBWPobeBRMOdjbrMlu2JLLstYTv44jPj8ZzegL7LVlCpeIaxk6aqLxDQUK3AhTXb_WwD2zn-R67K3lo348bkLRS1vYxPO2Rq9t3Wyp360b8SC1segiJ2oQRdU3PYNW06N2dCeVYBp/s1600-h/gazelle.jpg"><img style="margin: 0pt 10px 10px 0pt; float: left; cursor: pointer; width: 254px; height: 320px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj0UEFIBWPobeBRMOdjbrMlu2JLLstYTv44jPj8ZzegL7LVlCpeIaxk6aqLxDQUK3AhTXb_WwD2zn-R67K3lo348bkLRS1vYxPO2Rq9t3Wyp360b8SC1segiJ2oQRdU3PYNW06N2dCeVYBp/s320/gazelle.jpg" alt="" id="BLOGGER_PHOTO_ID_5313607682103425874" border="0" /></a><br />Like I said, I consider myself blessed. God gave me a passion for working out so I've never really thought of exercise as a burden I kind of chuckle at that now having to depend on movement so much. I have a pretty easy life with few demands and a considerable amount of free time. I'm a stay at home mom with one four year old so it's pretty easy for me to spend at least an hour each day working out and stretching. I get that my situation is ideal for what I'm preaching and that having a normal workday would present challenges. I get that I'm lucky to have the time and resources that I do, but really all it takes is 15 minutes, maybe a small piece of exercise equipment and a floor.<br /><br />Here's how I put my "secret" into practice in the morning:<br />Like I said, my feet hit the floor in the morning and I go down to my home gym which is a Gazelle (thanks Tony Little!), a Total Gym, a ballet bar and an elliptical.<br /><br />Ok, as embarrassing as this is, I have to say my Gazelle might just be my most prized possession. Ya know the question, what's the one thing you would go back into a burning building for (people aside of course) my $90 Gazelle is it! I hop on every day for 15 minutes at a very low rate of speed, my heart rate averages about 150 BPM max. It's here that I get to extend my legs and stretch my "rubber bands" after being in a prone position all night long. After only 10 minutes I begin to feel relief. This little machine is great because it doesn't take up too much space and can even travel with me since it's so light weight. In a pinch I've figured out that 15 minutes is enough to help, but most of the time I prefer to continue my workout and focus on building strength in my legs... but the rest of my morning workout is another entry I guess.Meganhttp://www.blogger.com/profile/16256736102360470619noreply@blogger.com0tag:blogger.com,1999:blog-4394633494411804024.post-38211662048410197782009-03-12T13:28:00.000-07:002009-03-12T15:04:25.710-07:00MOVE!I'm blessed beyond words. I have been given a <span class="blsp-spelling-error" id="SPELLING_ERROR_0">sucktastic</span> disease but I have also been given tools which help me not only cope but thrive. My husband says I have a secret and I should share it with some of the other 400,000 people who live with the same daily struggles I do.<br /><br />MS is supposed to stop it's victims from moving, so my secret is....<strong>move more</strong>. Most people with MS stop moving because it's scary. It's scary to think of riding a bike when you can't feel some of your toes, or drag yourself to the gym when MS has sapped you of every ounce of energy you have but getting past the minor <span class="blsp-spelling-corrected" id="SPELLING_ERROR_1">obstacles</span> and moving can lead to greater strength, pain management and an over all better outlook on life. My coordination stinks, I'm not "athletic," and I am no great addition to <span class="blsp-spelling-corrected" id="SPELLING_ERROR_2">any one's</span> sports team but I work out and move more than any other 28 year old I know.<br /><br />My legs hurt all the time, and since popping pills loaded with side effects doesn't sound all that appealing, I began to think of my legs like rubber bands. MS makes them feel tight but stretching them and moving helps relieve that feeling. My symptoms greet me the second my alarm goes off in the morning and my feet hit the ground, so I greet them back every morning by warming them up and stretching them out. When the tightness comes back a few hours later I make my muscles warm with a little work out then stretch again.... think shampoo....lather rinse repeat.<br /><br />Everyone has heard the saying if you don't use it, you lose it... but in our case I've found that's true to an <span class="blsp-spelling-corrected" id="SPELLING_ERROR_3">unprecedented</span> extreme!Meganhttp://www.blogger.com/profile/16256736102360470619noreply@blogger.com2