So I felt that it was rather appropriate to share this blog about my vacation on Halloween (seeing that it was only slightly less horrific than a Wes Craven thriller!)
In the last four years I’ve come to accept the fact that Captain MS and his pilot Rebif always steer the ship and I’m usually not even asked where I want to go.. but not this time! On this vacation I decided to be more in charge of my surroundings and activities to better suit my energy level and my fantastic symptoms. So my family decided to rent and RV and drive to the Black Hills. No long airplane rides and waiting in theme park lines for us!
Because it is absolutely essential for me to fit my workouts in throughout the day, our thought was that I could bring my trusty Gazelle, take potty breaks as often needed, and stretch my legs as we made progress on our journey. Prior to the trip, we spent many hours researching and planning activities that would be MS friendly (such as making sure flat walking trails were available so unstable, rocky ground wouldn’t be an issue.) Seeing our hard work pay off would have been lovely but unfortunately, we never made it that far.
No, instead of swimming at Evan’s Plunge or buying priceless souvenirs at Wall Drug, we found ourselves yanking burs off our puppy with needle nosed pliers, cleaning up a crushed can of ravioli, and scrubbing our daughter’s vomit off the carpet. Since stress results in excruciating leg pain for me, I was extremely thankful for all the room I had to move around (avoiding the smelly spills on the floor of course.) Due to the outrageously awful scent in the RV, our five day trip that we had been looking so forward to was turned into a day and a half long adventure.
I’m grateful to know that options do exist for making travel a little more comfortable with MS. And even though very little went according to plan, it makes for a good story!